Monday, 21 April 2025Unknown Session

EDM 1089: Future of children’s palliative care

28 total sponsorsTabled

Motion Text

That this House notes with concern the findings of the report entitled Built to Last? The State of Children’s Palliative Care in 2025, published by Together for Short Lives; recognises that the report reveals a stark postcode lottery in access to high-quality palliative care for seriously ill children across England, particularly in relation to 24/7 end-of-life care at home; expresses alarm that only 19% of Integrated Care Boards currently commission this service on a formal basis; acknowledges that this disparity is driven by workforce shortages, a lack of accountability among NHS bodies and councils and a significant funding shortfall projected to rise to £310 million by 2025-26; welcomes the vital services provided by organisations such as Shooting Star Children’s Hospices in Surrey Heartlands and surrounding areas; and calls on the Government to urgently implement the recommendations of the report by reviewing the funding and planning of children’s palliative care, investing in paediatric nursing bursaries and specialist consultant training, holding Integrated Care Boards and local authorities to account for delivering on existing policy, and committing to a sustainable, long-term funding model for children’s hospices, including the continuation of ringfenced, centrally distributed funding beyond 2025-26.

Sponsors (27 total)

Primary Sponsor
Mr Will Forster

Liberal Democrat (LD)

#2
Ian Roome

Liberal Democrat (LD)

#3
Wera Hobhouse

Liberal Democrat (LD)

#4
Jess Brown-Fuller

Liberal Democrat (LD)

#5
Jim Shannon

Democratic Unionist Party (DUP)

#6
Zöe Franklin

Liberal Democrat (LD)

#7
Sarah Dyke

Liberal Democrat (LD)

#8
Helen Maguire

Liberal Democrat (LD)

#9
Tom Morrison

Liberal Democrat (LD)

#10
Liz Jarvis

Liberal Democrat (LD)

#11
Tom Gordon

Liberal Democrat (LD)

#12
Clive Jones

Liberal Democrat (LD)

#13
Vikki Slade

Liberal Democrat (LD)

#14
Steve Darling

Liberal Democrat (LD)

#15
Andrew George

Liberal Democrat (LD)

#16
Mary Glindon

Labour (Lab)

#17
Helen Morgan

Liberal Democrat (LD)

#18
Mr Angus MacDonald

Liberal Democrat (LD)

#19
Dr Danny Chambers

Liberal Democrat (LD)

#20
Mr Lee Dillon

Liberal Democrat (LD)

#21
Christine Jardine

Liberal Democrat (LD)

#22
Siân Berry

Green Party (Green)

#23
Ellie Chowns

Green Party (Green)

#24
Rachael Maskell

Independent (Ind)

#25
James MacCleary

Liberal Democrat (LD)

#26
Adrian Ramsay

Green Party (Green)

#27
John McDonnell

Independent (Ind)

Details

UIN
1089
Date Tabled
21/04/2025
Total Sponsors
28
Status
Tabled